About the Webinar
We will be joined by Dr. Anne Marie Wills, who will discuss the basics of PSP and clinical trials. The event will begin with a discussion of the basics of PSP, including prevalence, common symptoms, and the underlying physiology of the disease. We’ll also discuss the impact of early diagnosis and how it impacts disease progression. Last, there will be an overview of how clinical trials work, how to make decisions about participating in a trial, and the importance of being involved in clinical trials from the first stages of the disease.
Dr. Wills will have time at the end to answer viewers' questions. Submit your questions via registration or email to events@curepsp.org.
This webinar will be recorded and available on our YouTube channel following the event. We will email all registrants a link when it's ready to view.
Anne-Marie Wills, MD, MPH
About the Speaker
Anne-Marie Wills MD MPH is a Neurologist specializing in neurodegenerative disease, such as Parkinson's Disease, Progressive Supranuclear Palsy (PSP), and ALS. She received her BA from Princeton University, her MD from Columbia College Physicians & Surgeons, and her MPH from Harvard School of Public Health. She completed her specialty training in the Mass General Brigham Neurology residency program, a combined program between Massachusetts General Hospital and Brigham and Women's Hospital. She has been on staff at Mass General since 2006.
Dr. Wills' research focuses on environmental risk factors and determinants of neurodegenerative disease progression, including nutrition, caffeine and pesticides. Her multi-center clinical trial of nutrition in ALS (funded by the Muscular Dystrophy Association) showed that a calorically-dense diet was better tolerated and led to fewer adverse events, including deaths, than a standard diet (Wills et al. The Lancet, 2014). She is also investigating the effects of exercise interventions for neurodegenerative diseases.
She is the director of the CurePSP Center of Care at MGH which provides multidisciplinary care for people with Progressive Supranuclear Palsy. She is a member of the Movement Disorders Society, the Parkinson’s Study Group (PSG), the NorthEast ALS Consortium, and the American Academy of Neurology. She is co-director of the Genes and Environment Working Group of the PSG, co-founder of the Atypical Parkinsonian Disorders working group of the PSG and is the PI of several clinical trials in Parkinson’s disease and PSP.
About CurePSP
Our mission is to raise awareness, build community, improve care and find a cure for PSP, CBD and MSA. CurePSP provides advocacy and support for patients, families, and caregivers; education for physicians and allied healthcare professionals; and funding for research. CurePSP is a US-based 501(c)3 tax-exempt organization (ID 52-1704978). Please click the link below for a copy of the CurePSP privacy policy. Questions about this policy can be emailed to Information Security Officer James Bernard at bernard@curepsp.org.